Originally Posted by Cinds:
Ditty, how old is Miss Ditty?
I had glandular fever at 19, and relapsed for a couple of years after. The ulcers never came until I had relapses, the worst one being when I was 21 and I was even more ill than with the glandular fever, so ill, my Mother even took time off work to stay home with me, because I puked for over a week constantly because of the infection running into my stomach from the burst ulcers in my throat. I was so ill I couldn't even stand up right, Mam & Dad had to carry me to the loo.
Imagine being 21/22 and your parents having to toilet you, not nice.
She's 19. She got it when she was 17. Was ill with it pretty much constantly for 6 months (kept trying to go back to school, & just ending up ill again)... both the throat thing & the fatigue.
Since then she's had a few relapses, usually lasting a week or two. They had been getting milder, we thought she seemed to be getting some sort of immune system back again (it totally knocked her immune system out... slightest wiff of a cold going round & she would be proper ill again).
Its been 8 months since her last relapse... we thought we were out of the woods. She's done all the things she was told to do... she goes to bed most nights before 10pm, eats healthily, avoids stress etc.
And then on Sunday evening ... WHAM... this came out of nowhere.
Started with the throat (ulcerated straight away)... and the fatigue... no temperature though.
Saw the GP today.. he has taken throat swabs, and given her penicillin (in case its tonsillitis or a secondary bacterial infection from the GF). We know the penicillin is unlikely to work... it never has before.
Reading what you have said has made my resolve to keep hassling the doctors if its keeps getting worse.
Thing is... cos she was away at school (& they automatically transfered her medical records to the GP close to the school).. there is a lack of continiuty of care. She had the initial blood tests for GF here, and they came back negative twice. But the Oxshott GP took one look at her and said it was absolutely definitely GF. She was back at our GP today, and its like starting from scratch again.
I bloody hate Glandular Fever... its a nightmare! Its just not fair that it keeps knocking her back when she is working so hard to get on with her life.