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I know this isn't necessarily the right outlet but FB is way too 'visible' for this and Gaga offers a certain level of anonymity which means I can write this down, which I need to do.

 

There's a lot of history in my family, as in any family, but I have not really spoken to my parents very much for a few years now, but we are at least back on communicating terms again.

 

A while ago, about 18 months, my mum was diagnosed with follicular lymphoma, but the tumour was very non aggressive, very slow growing and had been there for some time.  They treated it, the prognosis was good and they discharged her after a bout of chemo.

 

I have just had a phone call from my dad; I don't know specifics but they have taken my mum back into hospital.  Apparently she has an obstruction in her bowel and it's either a tumour or the original tumour, I am not too clear which.  However, my Dad said that they only have three options now, one is do nothing, with the inevitable consequences of that.  The second is radiotherapy, which they rejected - again I am not clear on the reasons for this. The third is emergency chemotherapy but speaking to my dad they don't seem very optimistic all of a sudden.

 

I am at a bit of a loss, Mr. LLF is being a great daddy so I can drive up there tomorrow to see her but I feel out of control and I don't know how to react at the moment.  Obviously I'm trying not to panic.  Has anyone come across this kind of thing? What should I expect?

 

I'm now lost for things to write, will probably update later :/

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How horrible for you . On the information you've got I really don't know what to say ..............I know it's easy to say but - be positive and try not to worry too much until you have all the why's and wherefores and the full facts.

 

Now might be the time to bury old conflicts and just get there to support your parents and get some of the loving back into your relationship. I'm sure we all fall out from time to time but ........now would be a good time to get your relationship back on track 

 

I hope it all goes well!

Soozy Woo

You cannot change the past, whatever has happened xx
I would suggest you get a good night,s sleep, and tomorrow speak to the medical team who is looking after your mum. Sometimes emotions take over and things that are said can be misconstrued . 
I hope you will find things are not so bad as they seem. 
Hugs to you  

FM

Thanks guys, I feel pretty crap at the moment.  I intend to speak to medical team myself as my dad can be a little, well, vague at times.

 

Me and my mum and dad are OK at the moment, we just don't talk that often these days. 

 

I just don't know what to make of it at the moment, I just keep bouncing it around in my brain and I don't have enough information to process it properly

 

I don't know, it's so sudden, surely she's not in imminent danger? I need to understand why they feel they can't operate, there must be something else they can do :/

littleleicesterfox
Originally Posted by littleleicesterfox:

Thanks guys, I feel pretty crap at the moment.  I intend to speak to medical team myself as my dad can be a little, well, vague at times.

 

Me and my mum and dad are OK at the moment, we just don't talk that often these days. 

 

I just don't know what to make of it at the moment, I just keep bouncing it around in my brain and I don't have enough information to process it properly

 

I don't know, it's so sudden, surely she's not in imminent danger? I need to understand why they feel they can't operate, there must be something else they can do :/

to be fair, sometimes they can blast you with information and you take in some and forget other bits. 

 

It's best to get them to explain things to you in terms that you will be able to understand and if you don't understand ask them to explain properly and don't be put off.

 

Will be thinking of you 

FM
LLF I agree with all the above advice, just take things 1 step at a time, and try to get as much information as you can. There's no black or White in these situations, so everyone reacts differently or in their own way. If you feel a bit overwhelmed, just breathe, give yourself a minute to calm yourself and then carry on. Please drive carefully and we're all here if you need a place to talk anonymously, we're all good listeners. I wish you the very best
~Sparkling Summer~

LLF I know it may seem like the family are being vague, this is a coping mechanism for them. Speak to the doctors if you can to get a better idea. Having lost my father, best friend to cancer in the last few years I can tell you they are usually happy to speak to relatives. There is never a definitive prognosis and that is a good thing. There is always hope, whether it be for full remission, an extended lifespan or just for some peace.

 

Best advice I can give you is to treasure every minute you have. It doesnt matter what your past relationship has been, it is now that matters. I dont know you but I send all my best wishes to you and your family. xxx

FM

I am so so sorry for you, about 3 years ago my dad was diagnosed with a non aggressive brain tumour which was also there for a while, about 15 years they said. not much to stress about they said.

 

so, one operation to remove...

came back 8 months later.. radiotherapy & op no`2

 

came back again and op no`3.. no chemo

 

came back again 2 months ago, he is now on chemo and i feel like my heart is being ripped out sometimes.

 

I know this wont cheer you up but please do not give up hope. Without that we have only despair.

 

I understand this is horrible & my thoughts are with you x

 

 

 

Clumsycat
Right, the situation looks pretty grim. The tumour has fused to my mums bowel, causing a bowel obstruction. If they ignore it she will die. They can't operate as that would kill her. The only option to save her is emergency chemotherapy to shrink the tumour but if they shrink it too quickly it will perforate the bowel and that will kill her. If they shrink it too slowly then the obstruction will kill her, they have got to get it just right. The chances of this happening are slim. My mum says she's very positive and has a good feeling about this but
although I am trying to keep my hopes up to me the situation looks bad.

Please keep your fingers and toes crossed in the next ten days, they are vital. Thanks for listening and all the hugs, I feel a bit shell shocked at the moment
littleleicesterfox

Ooooooooooooooooh LLF .........such a cary time for you ...........I've been there and I know how helpless you'll be feeling. All I can say is stay positive and just talk to your mum - give her some hugs, share sone love, have a laugh and keep focused on a positive outcome.

 

Your next few weeks with your mum (whatever the outcome) are precious ............enjoy your time and put all bad feelings away.

 

I'm really sorry for you . Make your time with your mum special - live in the now.

Soozy Woo

LLF

 

Sometimes positive thinking, medicine, good luck and gawd knows what else works in your favour ... my mother in law was diagnosed with spine, liver and brain cancer in April. She had shrunk to 6 stone, and was given 'a few' months to live, was told to 'go home and put her affairs in order'.

 

She was put on chemotherapy tablets which, she was warned, would cause chronic diarrhea and vomiting. 

 

Well, she ate the tablets like they were smarties, and they affected her in the same way - ie, not at all! She's put on two stone, the huge lump on her head has disappeared and a scan shows no sign of anything going on inside.

 

She's not cured, we know that. But, just for now she is fit, healthy, and happy.

 

Don't lose hope

Rexi
Originally Posted by Rexi:

LLF

 

Sometimes positive thinking, medicine, good luck and gawd knows what else works in your favour ... my mother in law was diagnosed with spine, liver and brain cancer in April. She had shrunk to 6 stone, and was given 'a few' months to live, was told to 'go home and put her affairs in order'.

 

She was put on chemotherapy tablets which, she was warned, would cause chronic diarrhea and vomiting. 

 

Well, she ate the tablets like they were smarties, and they affected her in the same way - ie, not at all! She's put on two stone, the huge lump on her head has disappeared and a scan shows no sign of anything going on inside.

 

She's not cured, we know that. But, just for now she is fit, healthy, and happy.

 

Don't lose hope

How fantastic . It's so good to hear stories like that. Long may her good health continue!

Soozy Woo

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