it happened all of a sudden really.. she was doing ok ish (but had developed Cushings Syndrome) .., then Thursday night - bam!
We have Hospice at Home teams in.. and the End of Life Nurse..
Whilst they won't give us any timeframes the EoL Nurse says its likely to be days...
I've never seen anyone in such a state as Mum is in.. she's not in pain, which is a god send.. but everything else is packing up. She's rarely lucid, in & out of consciousness..
they are putting a hospital bed in tomorrow.. meanwhile my brother has come down for the next few days which has given me some peace of mind that someone is with Dad.. it means I can come home to sleep & for a few hours now & then.
They should teach us what happens when you die at school.. cos I have had to do the worlds worst googling over the past few days.. and read some really grim leaflets from the various nurses..
Dad is.. there are no words really.. he's kinda in denial.. panicking.. won't sign the DNR, still talking about getting her to her consultant appointment on the 18th where she was going to be put on Tarceva (life lengthening drug)..
We have to try to help him accept what is happening.. cos her treatment has now changed.. the IV meds line is for meds to keep her comfortable..
I nearly typed all this in Rentons "what did you do today" thread.. but thought it might be a bit of an extreme post in the context of that thread..
anyways.. just wanted to let you know really xx