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it happened all of a sudden really..   she was doing ok ish (but had developed Cushings Syndrome) ..,  then Thursday night - bam!

 

We have Hospice at Home teams in..   and the End of Life Nurse..   

 

Whilst they won't give us any timeframes the EoL Nurse says its likely to be days...  

 

I've never seen anyone in such a state as Mum is in..   she's not in pain, which is a god send..  but everything else is packing up.   She's rarely lucid, in & out of consciousness..   

 

they are putting a hospital bed in tomorrow..    meanwhile my brother has come down for the next few days which has given me some peace of mind that someone is with Dad..   it means I can come home to sleep & for a few hours now & then.

 

They should teach us what happens when you die at school..   cos I have had to do the worlds worst googling over the past few days..   and read some really grim leaflets from the various nurses..  

 

Dad is..  there are no words really..  he's kinda in denial..   panicking..     won't sign the DNR,  still talking about getting her to her consultant appointment on the 18th where she was going to be put on Tarceva (life lengthening drug)..  

 

We have to try to help him accept what is happening..   cos her treatment has now changed..   the IV meds line is for meds to keep her comfortable..   

 

I nearly typed all this in Rentons "what did you do today" thread..   but thought it might be a bit of an extreme post in the context of that thread..  

 

anyways..   just wanted to let you know really xx

Replies sorted oldest to newest

Originally Posted by Rexi:

I don't know what to say Ditty

 

Just huge hugs and I hope that, when it happens it is peaceful and painless.

 

xxxxx

and soon..   I know it sounds horrible but I just want it to be soon..  

 

the thought of this going on for weeks...  I can't cope with it..    all of it..   especially my Dad..     watching him trying to desperately keep her around for as long as possible..   anyway possible..    and knowing its because he just can't cope with losing her... 

 

Dirtyprettygirlthing
Originally Posted by Dirtyprettygirlthing:
Originally Posted by Supes:

Oh Ditty, I have no words 

I know..  there aren't any really are there.. 

 

I dunno why I posted it really..   I just..  I dunno..       I can't join in any other threads cos it I can't relate to any of them..    

 

I just wanted to tell you all what was happening 

youre with mates here

you chat as long as you want to/can do babe

pirate1111

Ah Ditts, I'm so sorry     You know what though - you've all got this far and you'll see her and each other through this too.   I'm sure the palliative care team will make sure she's not in any pain and later you can take comfort in the fact that you've had the time you had - you've not left anything unsaid and that's something not everyone gets the chance to do.   Big hugs for you all x

Kaffs
Originally Posted by Dirtyprettygirlthing:

this is the bit I have been so scared of..    for the past year..  

And here you are doing it. However much you can't imagine you can, you most certainly will. It won't be easy but I imagine that, despite your fears, you will be a rock to those around you who might need you to be, like your poor dad

  

I wish you a mountain of strength - and bravery - to deal with your own moments of fear and sadness. Lots of love to you all, it is an impossibly sad thing to go through xxx

 

 

“And one has to understand that braveness is not the absence of fear but rather the strength to keep on going forward despite the fear.” Paulo Coelho
Triggers

Ditts, I'm so so sorry to hear this news.  I understand what you mean about it being sooner rather than later. When Mr C lost his mother we were told it would be a matter of days, but it was over two weeks, which in one way was good because it gave his brother in Australia a chance to get here, which didn't happen when they lost their father months later. 

 

All you can do now is be there for your Mother and especially your Father. When his Mum finally went, we were the only ones there, but we were holding her hands and it was very very peaceful.

 

Sending you a massive virtual hug. Xxx

Cinds
Originally Posted by Dirtyprettygirlthing:
Originally Posted by Triggers:
 

 

 

“And one has to understand that braveness is not the absence of fear but rather the strength to keep on going forward despite the fear.” Paulo Coelho

yes to this..     god yes to this..  

 

to be brave you have to be afraid... 

 

and being brave is a decision... 

 

Well said Triggers.  Ditts, you are the woman for this crisis. And you have a 100% support from your family and your FM friends. 

Xochi

 

Very, very sorry to read about your mother in this post. Like many others I find it very hard to think of what to say.

 

I hope they make your mother as comfortable as possible and that you and your family get through this very difficult time with as little pain as possible.

 

If it helps you get through it, use this forum, I'm sure there are people here willing to listen and talk.

 

EC.

Enthusiastic Contrafibularities
Originally Posted by Dirtyprettygirlthing:
 

and soon..   I know it sounds horrible but I just want it to be soon..  

 

the thought of this going on for weeks...  I can't cope with it..    

 

totally get and understand how you feel but however long you will cope and will get through - there is an inner strength hiding for these times 

 

You are a very special person Ditty -always thinking of and helping others - just know that we are all here if you need to offload and we are all thinking of you and the Family at this very sad time  

MrsH

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