No, he's not dead.. but i just found this.. I'm so sad. Horrible disease.
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Oh jeez ... wouldn't wish that on my worst enemy
Such a devastating disease. My heart goes out to him and his family.
I have loved his music since I was a teenager.
How very sad
it's truly awful
When my Dad was suffering with it I became quite tuned in to news stories about the disease. I recall that on the BBC they interviewed Glen and his wife quite a while ago now.
They talked about what he was doing at the time and what they plan for the future. I've been expecting a story to appear sooner or later.
Sad for them as it was only at the beginning of the year that I lost my Dad to it.
On the upside, a friend of mine raised around ÂĢ400 this weekend for Alzheimer's.
My brother was diagnosed at 54 EC, he still knows us...but he's no longer the brother I remember...it's truly heartbreaking so I know how you feel and those forum members who are touched by it. Luckily my brother no longer remembers his illness, but when he was first diagnosed it had a dreadful effect on him and he aged ten years in a matter of weeks,
EC
Dame
Sorry you've both had loved ones with this awful disease. It must be heartbreakingly cruel to witness
Originally Posted by Dame_Ann_Average:
My brother was diagnosed at 54 EC, he still knows us...but he's no longer the brother I remember...it's truly heartbreaking so I know how you feel and those forum members who are touched by it. Luckily my brother no longer remembers his illness, but when he was first diagnosed it had a dreadful effect on him and he aged ten years in a matter of weeks,
Sorry to hear about your brother Dame. It's a disease which really lives up to it's name as 'the long goodbye'. I think you are lucky in one respect that he still knows who you are, with Dad he slowly drifted away until the point where he did not know us.
Is he still been cared for at home?
Originally Posted by Enthusiastic Contrafibularities:
,
It's a disease which really lives up to it's name as 'the long goodbye'. I think you are lucky in one respect that he still knows who you are, with Dad he slowly drifted away until the point where he did not know us.
How devastating for you EC so sorry
Originally Posted by Roger the Alien:
Originally Posted by Enthusiastic Contrafibularities:
,
It's a disease which really lives up to it's name as 'the long goodbye'. I think you are lucky in one respect that he still knows who you are, with Dad he slowly drifted away until the point where he did not know us.
How devastating for you EC so sorry
Thanks Roger
Originally Posted by Enthusiastic Contrafibularities:
Originally Posted by Roger the Alien:
Originally Posted by Enthusiastic Contrafibularities:
,
It's a disease which really lives up to it's name as 'the long goodbye'. I think you are lucky in one respect that he still knows who you are, with Dad he slowly drifted away until the point where he did not know us.
How devastating for you EC so sorry
Thanks Roger
EC, Dame It's a truly horrible thing - hope i didn't upset you, I was just so sad when I read it.
Thanks Rosie and Kaffs and no you didn't upset me Kaffs, honestly
Originally Posted by Enthusiastic Contrafibularities:
Sorry to hear about your brother Dame. It's a disease which really lives up to it's name as 'the long goodbye'. I think you are lucky in one respect that he still knows who you are, with Dad he slowly drifted away until the point where he did not know us.
Is he still been cared for at home?
I'm sure we will get to that point in the not so distant future EC and yes his wife cares for him at home and intends to as long as she can.
Shame for Glen
and a big for those with family members affected by this terrible disease
Originally Posted by velvet donkey:
Thoughts to all who have been and are affected by this terrible condition
My late uncle was on that road till something else got him.
Really makes you stop and think.
*Seconds*
Originally Posted by Kaffs:
EC, Dame It's a truly horrible thing - hope i didn't upset you, I was just so sad when I read it.
No, I'm fine thanks Kaffy
Originally Posted by Dame_Ann_Average:
Originally Posted by Enthusiastic Contrafibularities:
Sorry to hear about your brother Dame. It's a disease which really lives up to it's name as 'the long goodbye'. I think you are lucky in one respect that he still knows who you are, with Dad he slowly drifted away until the point where he did not know us.
Is he still been cared for at home?
I'm sure we will get to that point in the not so distant future EC and yes his wife cares for him at home and intends to as long as she can.
That's good that he is still at home. My Dad became a little too difficult to handle/care for with some violence/temper outbursts.
Originally Posted by Enthusiastic Contrafibularities:
That's good that he is still at home. My Dad became a little too difficult to handle/care for with some violence/temper outbursts.
new medication to deal with that part of it seems to work EC, although it makes it more difficult for him to comprehend basic functioning. He's been very quiet since his medication was changed last year thankfully, I was getting fearful for his wife at one point 
Originally Posted by Dame_Ann_Average:
Originally Posted by Enthusiastic Contrafibularities:
That's good that he is still at home. My Dad became a little too difficult to handle/care for with some violence/temper outbursts.
new medication to deal with that part of it seems to work EC, although it makes it more difficult for him to comprehend basic functioning. He's been very quiet since his medication was changed last year thankfully, I was getting fearful for his wife at one point
I found that they were constantly adjusting medication and dosages to try and find the right balance. The added complication was that he had a touch of diabetes.
I found that sometimes he was alert and others he slept throughout our visits.
Let's hope they make some medical advances in the near future.
Originally Posted by Enthusiastic Contrafibularities:
I found that they were constantly adjusting medication and dosages to try and find the right balance. The added complication was that he had a touch of diabetes.
I found that sometimes he was alert and others he slept throughout our visits.
Let's hope they make some medical advances in the near future.
I certainly hope so EC it worried me for ages when he was diagnosed, I'm his only sibling and I was a really paranoid at the beginning.. although I wouldn't have any tests, I wouldn't want to live with the thought I may one day suffer the same disease 
I read this thread earlier and couldn't reply because it had me in tears. Mr Cinds mother had Alzheimer's and it's one of those awful diseases you don't truly understand until you are faced with it.
Since we lost his mother, I have joined this https://www.dementiafriends.org.uk/ it's free.
Horrid horrid illness.
Originally Posted by Dame_Ann_Average:
Originally Posted by Enthusiastic Contrafibularities:
I found that they were constantly adjusting medication and dosages to try and find the right balance. The added complication was that he had a touch of diabetes.
I found that sometimes he was alert and others he slept throughout our visits.
Let's hope they make some medical advances in the near future.
I certainly hope so EC it worried me for ages when he was diagnosed, I'm his only sibling and I was a really paranoid at the beginning.. although I wouldn't have any tests, I wouldn't want to live with the thought I may one day suffer the same disease
Me too. What it has done is make me a bit more active in planning the short term future, mainly in the sense that I need to do more things for me and things I want to do or have always wanted to do but worried more about work and career.