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FM
Former Member

 Lots of people have been asking about Ditty .. spoke with her last night  and said I would give folks an update on what's been happening. She's not up to posting herself right now, but knows folk are thinking of her and appreciates that very much. 

As you know, her mum was very very ill the last time ditty posted and the nurses had indicated she was very close to the end. However , the consultant intervened, saying it was important she get to an appointment that had been arranged to look at prescribing Tarceva, a drug that can lengthen life . He prescribed more steroids ,basically to get her through to the date of the appointment,  and there was a short-term improvement in response . Unfortunately though he then called in the day before the appointment to say she was far too ill for the drug and that the steroids should be withdrawn too . As you can imagine, the family's been through it , trying as best they could to prepare for the worst, then being given some hope, then having that shot down.

Ditty's mum is now back to where she was prior to the steroids- she's very,very ill indeed  and the end of life team are involved. The syringe driver's in place ready to be used and now it's just about making her as comfortable as possible and hoping for as good a passing as possible.

 

Will keep you updated x

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