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FM
Former Member

Hi I've been googling for NHS patient forums but mostly its bliddy official NHS forum pops up. Can't find a good active one.

The Cure The NHS site is so inspiring but it isn't a forum.

Was going to start a thread on DS but not sure...

 

Its NHS and Mental Health specifically. But the cruelty and incompetence covers all areas of NHS. I suffer from agoraphobia and depression. I lived for four years beside  an incrediby loud and disturbed woman banging thumping and shrieking day and night. By incredible coincidence she has the same consultant as mine. I emailed him begging the CMHT to section her but they wouldn't. Police were called and were good but despite recommending further action the CMHT kept insisting she "presented as normal" despite me filming footage of her loud banging thumping and shouting for months. She sent me six increasingly bullying and threatening letters and seems somehow to have found out intimate and private info about me [intercepting my letters? We have old fashioned wooden postboxes in our hall - locked but with a big slot]. She is taunting me that she's passed stuff on to journalists about me. She shouted through my door, thumped it once and even recorded a cd which she put under my door. At first the nurse told me it didn't contain anything then later admitted it did. She was asked several times to hand it over to the police but always made an excuse. I only ever had one care plan from this nurse in three years and it was full of lies - luckily I can prove they're untrue.

The worse the disturbances were, the higher the dose of antipsychotics prescribed me which I wondered was it ethical as it didn't help with going out or facing people. The police say she has been known to them for years and suggested she be charged with harassment but its risky as it would make her more angry.

 

By the time they broke her door in she'd disappeared but leaving her stuff behind. She has the keys to my building and will be back to get her post as she's a serial crank letter writer.

 

Thats only the start of it. It got MUCH worse after I wrote to the Nurse Manager requesting a different nurse and raising concerns about my care and for details of the complaints procedure...

 

Anyway... won't ramble. I just want to find others... I haven't had the terrible experience like the poor Mid Staffs families of having their loved ones killed from lack of care thank God. However at least ordinary patients have a voice - as a MH patient I'd be given no credence whatsoever.

 

Where should I go?

Was looking at starting a blog but would like it to be private for now and non googleable. Until my complaint is processed. Access only by giving peeps a link or password.

Any advice please?

There's always an answer here...

OR if you have a bad NHS or Care experience - like Cologne's bad Care Assistant problem -  please share it!  All info is good.

Ta xx

Replies sorted oldest to newest

Originally Posted by Roger the Alien (fka noseyrosie):

Thanks Erin and Dame for going to the trouble. I had looked at that sucks forum but its not very active if you look at the posts and threads - was hoping for a big busy one. Can't believe with the scandals there isn't a huge site.

 

Thanks for helping though 


Try this ,it's an active forum

http://www.mentalhealth-world.org.uk/forums/

FM
Originally Posted by Sprout:

I would say the police Roger giving this post as evidence and I know it will be hard but don't give up nagging at people. Come here to rant if you need to.   tampering with mail? It's not on and is a criminal offence  Seems to me (from the outside) it's not an NHS problem. It's a neighbour problem 

It is a police problem Sprout  but problem is she is so ill that she's fearless when it comes to possible repercussions for herself. Nothing deters her - she has never been put off by police or threat of evicition, anything. She got sectioned in 2009 for writing letters to Tony Blair. She knew that could get her sectioned but started bombarding me with letters. She hallucinates + her brain is completely broken - she just doesn't think like you or I. She really needs sectioning. I have sympathy for her believe me but years of mental torture and its gone

 

The CMHT should have take her in. When I wrote saying I wanted to complain and wanted better care and a new CPN they sent me a businesslike letter giving the complaints contact details etc. But also saying I could no longer email my CPN - after four years! . I asked by phone but no - not even to pass on scans  of further letters..

My CPN had a key to the buidling for 1 year as often I was scared to go down to the front door. Thats been returned. The CPN used to bring my meds past 3 yrs  but now I have to go to my GP and ask a mobile chemist deliver them. All these three care reductions were contained in their reply letter.

There are sociopaths working in the NHS. 

FM
Originally Posted by Roger the Alien (fka noseyrosie):
Originally Posted by Sprout:

I would say the police Roger giving this post as evidence and I know it will be hard but don't give up nagging at people. Come here to rant if you need to.   tampering with mail? It's not on and is a criminal offence  Seems to me (from the outside) it's not an NHS problem. It's a neighbour problem 

It is a police problem Sprout  but problem is she is so ill that she's fearless when it comes to possible repercussions for herself. Nothing deters her - she has never been put off by police or threat of evicition, anything. She got sectioned in 2009 for writing letters to Tony Blair. She knew that could get her sectioned but started bombarding me with letters. She hallucinates + her brain is completely broken - she just doesn't think like you or I. She really needs sectioning. I have sympathy for her believe me but years of mental torture and its gone

 

The CMHT should have take her in. When I wrote saying I wanted to complain and wanted better care and a new CPN they sent me a businesslike letter giving the complaints contact details etc. But also saying I could no longer email my CPN - after four years! . I asked by phone but no - not even to pass on scans  of further letters..

My CPN had a key to the buidling for 1 year as often I was scared to go down to the front door. Thats been returned. The CPN used to bring my meds past 3 yrs  but now I have to go to my GP and ask a mobile chemist deliver them. All these three things were contained in their reply letter.

There are sociopaths working in the NHS. 

This is not right. it's tantamount to bullying which (again) isn't on. Deffo, as Erin says get your MP involved. You need to be out of there! Hang in there  

FM
Originally Posted by Roger the Alien (fka noseyrosie):
Originally Posted by erinp:

Dont know if this is any help

Share your story http://www.mentalhealth.org.uk...ws/share-your-story/

I would also contact the MP for your area and the local housing authority.

Thanks Erin + bless you heart for all your suggestions 

Just checked that link and its BRILLIANT just what I was looking for! You're a star Erin xx  

I'm buying ye a pint come Paddys Day! 

FM
Originally Posted by Roger the Alien (fka noseyrosie):
Originally Posted by Roger the Alien (fka noseyrosie):
Originally Posted by erinp:

Dont know if this is any help

Share your story http://www.mentalhealth.org.uk...ws/share-your-story/

I would also contact the MP for your area and the local housing authority.

Thanks Erin + bless you heart for all your suggestions 

Just checked that link and its BRILLIANT just what I was looking for! You're a star Erin xx  

I'm buying ye a pint come Paddys Day! 

Well done Erin! 

FM
Originally Posted by Roger the Alien (fka noseyrosie):
Originally Posted by Roger the Alien (fka noseyrosie):
Originally Posted by erinp:

Dont know if this is any help

Share your story http://www.mentalhealth.org.uk...ws/share-your-story/

I would also contact the MP for your area and the local housing authority.

Thanks Erin + bless you heart for all your suggestions 

Just checked that link and its BRILLIANT just what I was looking for! You're a star Erin xx  

I'm buying ye a pint come Paddys Day! 

Just stay safe and well

and I'll have a Bacardi

FM
Originally Posted by Sprout:
Originally Posted by Roger the Alien (fka noseyrosie):
Originally Posted by Sprout:

This is not right. it's tantamount to bullying which (again) isn't on. Deffo, as Erin says get your MP involved. You need to be out of there! Hang in there  

Good advice Sprout... I was thinking of contacting him but hes a New Labour gobshoite  who lost his London seat after one of the hugest expenses claims + shifted down here!

Its not her so much I'm angry at more the NHS lack of humanity...

 

Haven't told you the rest of the story yet - its been vicious since I complained, one blow after another. Spoke to both my consultant and the nurse manager and they are devoid of any humanity - typical box ticking superficial approach and not normal people at all. I asked my consultant if it would help if the police spoke to him to confirm I could be in danger and persuade the CMHT to give the new CPN my key again. He said no. Pushed me to take antipsychotics again and dismissed the weight and thyroid problems I suddenly developed after being switched from antidepresants to antipsychotics . There was a programme about Shipman the other night and it seemed familiar - just the arrogance and non-humanity.

By the way in 2009 I had a fantastic CPN who was wonderful hardworking and kind but she went back to work nights at the hospital.

FM
Originally Posted by erinp:
Originally Posted by Roger the Alien (fka noseyrosie):
Originally Posted by Roger the Alien (fka noseyrosie):
Originally Posted by erinp:

Dont know if this is any help

Share your story http://www.mentalhealth.org.uk...ws/share-your-story/

I would also contact the MP for your area and the local housing authority.

Thanks Erin + bless you heart for all your suggestions 

Just checked that link and its BRILLIANT just what I was looking for! You're a star Erin xx  

I'm buying ye a pint come Paddys Day! 

Just stay safe and well

and I'll have a Bacardi

Its yours Erin and thanks   You're great at this stuff. You're the Erin Brokovich of this forum ! 

FM

Oh b.t.w to clear it up. She has gone from the building her stuff was removed by the landlord- and he changed the lock. Last I heard the police were looking for her to arrest her for sectioning but the CMHT will release her after a few days probably. She will never be ok without meds.

 

Its the threat to spread things about me thats a worry though I fear she'll be back too for her post and also she thought there was a camera in her flat recording things so she may lurk around, still having the keys.

 

I uploaded the disturbances to Youtube private channel and used to email them to the CMHT when I was allowed email and to the police.

 

Heres a link b.t.w. You need to turn the volume right up as my crappy mobile doesn't record sound at a distance well.

 

http://www.youtube.com/watch?v=Zt7QsXGIb_c

 

Thats how bad it was. Suffering it for months nearly gave me a breakdown but my consultant just passed over it like it was nothing and suggested a psychologist  to help with the agoraphobia if not antipscyhs which he's really pushing. He's seen the videos but he's always spending NHS money instead of taking responsibilty for not intervening sooner.

 

 

 

FM
Last edited by Former Member
Originally Posted by erinp:

Minister for mental Health UK

Mr Lamb seems genuinely committed to improving mental health services and involving those who use those services to drive improvement. We will continue to work to ensure that our members and other service-users are listened to and given the control that improves their lives, outcomes and saves money.’

 

http://www.nsun.org.uk/news/ns...ge-of-mental-health/

That is fantastic  . How do you find this stuff Erin. I genuinely have been googling like mad. That could get me somewhere with this  

FM
Originally Posted by Roger the Alien (fka noseyrosie):
Originally Posted by erinp:

Minister for mental Health UK

Mr Lamb seems genuinely committed to improving mental health services and involving those who use those services to drive improvement. We will continue to work to ensure that our members and other service-users are listened to and given the control that improves their lives, outcomes and saves money.’

 

http://www.nsun.org.uk/news/ns...ge-of-mental-health/

That is fantastic  . How do you find this stuff Erin. I genuinely have been googling like mad. That could get me somewhere with this  

You need to take action ,just watched the vid(I embedded it ) and I am furious you have to live like like that.

FM
Originally Posted by erinp:
Originally Posted by Roger the Alien (fka noseyrosie):
Originally Posted by erinp:

Minister for mental Health UK

Mr Lamb seems genuinely committed to improving mental health services and involving those who use those services to drive improvement. We will continue to work to ensure that our members and other service-users are listened to and given the control that improves their lives, outcomes and saves money.’

 

http://www.nsun.org.uk/news/ns...ge-of-mental-health/

That is fantastic  . How do you find this stuff Erin. I genuinely have been googling like mad. That could get me somewhere with this  

You need to take action ,just watched the vid(I embedded it ) and I am furious you have to live like like that.

*Goes to click* 

FM
Originally Posted by Sprout:

Oh flippin eck Roger!  I still think the police is the way to go, if necessary C&P this thread and print out. Also go to the council and plead your case. Like I said it's not gonna be easy but we're here if you want to shout and rant and rave 

 

You need to be as far away as possible from her! 

Thanks Sprout. Maybe I will. Strangely I'm getting things across much better here - maybe cos I'm more relaxed among you lot - when you're on edge with uncaring dismissive MH professionals you get a bit tongue tied and they talk you down constantly.

I know Velvet has had some experience of MH professionals too  wonder what he thinks.

FM
Originally Posted by Sprout:

If the landlord's changed the lock she can't get in though to recover her post Roger  I would imagine only the police have the jurisdiction (sp) to get in there and get at that ? 

 

I don't know what I can advise about the spreading of crap at this moment. Maybe others can advise better 

Sorry I should have mentioned, its a a big apartment building and there are individual postboxes in the downstairs hall - the slots so big you can yank stuff out anyway.

FM
Originally Posted by Roger the Alien (fka noseyrosie):
Originally Posted by Sprout:

If the landlord's changed the lock she can't get in though to recover her post Roger  I would imagine only the police have the jurisdiction (sp) to get in there and get at that ? 

 

I don't know what I can advise about the spreading of crap at this moment. Maybe others can advise better 

Sorry I should have mentioned, its a a big apartment building and there are individual postboxes in the downstairs hall - the slots so big you can yank stuff out anyway.

Can you apply for a postbox at the post office? If I read it right, it's a place where all mail for your address can be picked up by an agreed person  

FM
Originally Posted by erinp:

The manifesto

Police officers will receive  training to identify and treat people with mental health conditions appropriately. Commissioners of health and social care services will actively involve the mental health community in the design and delivery of those services.

 

http://www.nsun.org.uk/news/london-manifesto/

Thanks Erin. Problem is police don't have the power to detain her more than a few hours - a CMHT assessment is made whether to section her or not and they just turn a blind eye. Theres been a lot in the news about "Care In The Community" mental health patients hurting people and they had violent pasts and were let out. Its shocking.

 

You are so good at this I am seriously thinking of employing you   You've really helped THANK YOU. Fightin' Irish!

FM

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