Hi I've been googling for NHS patient forums but mostly its bliddy official NHS forum pops up. Can't find a good active one.
The Cure The NHS site is so inspiring but it isn't a forum.
Was going to start a thread on DS but not sure...
Its NHS and Mental Health specifically. But the cruelty and incompetence covers all areas of NHS. I suffer from agoraphobia and depression. I lived for four years beside an incrediby loud and disturbed woman banging thumping and shrieking day and night. By incredible coincidence she has the same consultant as mine. I emailed him begging the CMHT to section her but they wouldn't. Police were called and were good but despite recommending further action the CMHT kept insisting she "presented as normal" despite me filming footage of her loud banging thumping and shouting for months. She sent me six increasingly bullying and threatening letters and seems somehow to have found out intimate and private info about me [intercepting my letters? We have old fashioned wooden postboxes in our hall - locked but with a big slot]. She is taunting me that she's passed stuff on to journalists about me. She shouted through my door, thumped it once and even recorded a cd which she put under my door. At first the nurse told me it didn't contain anything then later admitted it did. She was asked several times to hand it over to the police but always made an excuse. I only ever had one care plan from this nurse in three years and it was full of lies - luckily I can prove they're untrue.
The worse the disturbances were, the higher the dose of antipsychotics prescribed me which I wondered was it ethical as it didn't help with going out or facing people. The police say she has been known to them for years and suggested she be charged with harassment but its risky as it would make her more angry.
By the time they broke her door in she'd disappeared but leaving her stuff behind. She has the keys to my building and will be back to get her post as she's a serial crank letter writer.
Thats only the start of it. It got MUCH worse after I wrote to the Nurse Manager requesting a different nurse and raising concerns about my care and for details of the complaints procedure...
Anyway... won't ramble. I just want to find others... I haven't had the terrible experience like the poor Mid Staffs families of having their loved ones killed from lack of care thank God. However at least ordinary patients have a voice - as a MH patient I'd be given no credence whatsoever.
Where should I go?
Was looking at starting a blog but would like it to be private for now and non googleable. Until my complaint is processed. Access only by giving peeps a link or password.
Any advice please?
There's always an answer here...
OR if you have a bad NHS or Care experience - like Cologne's bad Care Assistant problem - please share it! All info is good.
Ta xx