Thank you Karma I will read it now

Karma I dont like much what I have already read in the links and scrapping mobility if you are in a care home is nothing short of disgraceful,I saw that case on the news about that lady's son who is in a care home will lose his mobility,who would have thought that Cameron and his government would stoop so low, he had a disabled son who had to be cared for you would think he would realise they do have needs and unfortunately it costs money to fufill those needs,this is totally unacceptable,I hope there is a  human rights law that will prevent these happenings,I would not think even tory voters will be happy about these changes.. thank you for the links

Karma, I've been reading you're in a wheelchair just now  

I hope your health picks up pal   

Ditto

Bless you both, thank you Yeah I'm using one at the mo, good days, bad days...you know how it is. x

Marg, there is a lot of information out there, but what I would say is be careful what you read as some of it can be not quite true. The links I put up hopefully do give the correct facts about what's happening. It seems to be like the Government are trying to uniform the disabled into yes or no brackets and it's just not possible as disabilities are extremely complex. (e.g, visually someone may look perfectly ok, but they could be suffering from a disability).

I am not worried about the assessments, I am worried that the doctor doing the assessments has experience in the area they are assessing and it's not just a case of 'if you can wave your arms above your head you are able to work'. As the person assessing claims will be totally independent, I believe they should work with your GP and other professionals involved in your care to ascertain a full and informed assessments of your needs and capabilities. The Government need to speculate to accumulate, but it has to be executed properly.

There is also the issue of the lack of jobs. With the market the way it is, although Employers have to be seen to be taking on those with disabilities, how many will spend money adapting work conditions to accommodate this? It's hard enough to keep able-bodied people in work let alone consider a candidate that may need provisions or time off. Even some housebound people want to work but companies will not take on the insurance risk just in case something happens to the employee at home in 'working hours' and the company will be responsible.

The link I put up to the consultations is probably the best one for getting your voice heard. It's a bit of a lengthy process but worth it. Another step is to contact your MP and put your thoughts forward. Whether it will get anyone anywhere, who knows? But at least its trying to do something to fight for what's legally and rightfully yours xx

I know. I'm certain that I didn't fill the forms in properly in the beginning and they never even bothered to contact my doctors. Although I'm glad I get it now, I do feel that my days are really numbered because I have been offered another benefit (I can't remember the name off the top of my head) which is basically paid if you've had it and they just try to keep you comfortable. I don't feel that ill until I start moving around. I took my family for lunch on Friday and parked right beside the door of the pub. I was still out of breath when I got in and when I had to leave. I try not to get upset about it, but it's hard sometimes. Because I have a bit more money now, I have an aquaintance coming in to do heavy housework for me, everything really, bar cooking and the dishes, although it all takes me hours, I need to do something to stop myself going round the bend.

Sorry, I've ended up moaning again. I can't talk to my kids, they don't want to confront reality, same with my friends, apart from one and she's away on holiday, which is why the forum had it for a few days.

col - my heart goes out to you too sweetheart  

Hopefully this place will keep you well abreast of any financial implications 

You're a comic and you don't know it too when you've had a few 

Luv's ya   

Thanks velvet . I seem to get angry more than I used to and every morning I kinda cross fingers that I haven't peed off anybody on here. I'd much rather just be happy and funny. I shall strive towards that.

Col, you should be getting a lot more help than you have....you shouldn't be having to pay for a cleaner?! If you have to fill out any more forms (or for anyone who has to fill out disability forms) - give your local CAB a call first and see if you can get an appointment as they will help you do this. You should have a carer (an official named carer) to help you if you are unable to carry out day to day duties in the home. This can be a family member, a friend or a professional, I really would advise you ask your GP to get you in touch with the relevant services (not always social services) to get you some help. Just because you can drive to a venue to have lunch does NOT mean you are fully capable of looking after yourself, and its a shame your kids find it difficult to face the reality of the situation :/

But the long and short of it is you DO need some assistance in the home. There are some fantastic people out there who work in this field and who genuinely want to help, you just need to be put on the right track to be in touch with them.

My old GP left to it me for a year and just kept shoving Tramadol and morphine down my neck. The minute I changed my GP things completely changed for the better and I've now got a physio and OT working with me (and got the ME diagnosed - developed cos of the surgery - which has taken months but at least I'm getting the proper medical care). For God's sake don't suffer in silence.

Sorry to ramble on, I just feel so strongly about this!

Believe me...I'm laughing with you 

Great timing of the post Velvet!

It's not all doom and gloom even though it sounds it. Still plenty to smile about