*goes to google*...I'll be back to discuss soon...

I was telling someone about this once and they thought I was making it up...it must be awful, its down to have too much summat or other in yer blood or summat, resulting in you giving off a stinky fish smell, so bad that other people can smell it on you....you have to change your diet and that to get the levels of summat or other down and reduce the smell.



Must be terrible to be a sufferer....



ello gorge

She's got that funny looking Dr on the couch with her. She's eating some kind of charcoal which helps it. If that were me, I'd probably end up getting the self lighting bbq things and blow myself up

Only two things that smell like fish....and one of them's fish!   

My friend told me about a bloke she knew, who had this beautiful talented fiancee, who was a classical musician. He dumped her before the wedding because despite all her accomplishments and other charms, she stank like the inside of a freezer compartment.

You knew about this?? (Not that I'm outraged you do, just surprised cos I've never heard of it )

I've been way too close to people that right ming on the trains but have never smelt fish. Is it rare?

And ello bird

When I was a teenager there was a girl called Kim who was a bit friendly with the fellas (if you get what I mean) anyway this bloke had a bit of how's your father with her in the garages and people said that stank of fish afterwards

Sounds raw to me. 

It used to be, but now with more people hearing about it it classed as 'uncommon'...I had never heard of it before, it was only discovered in the 70's.....awful illness.

I'm now a bit perplexed by this condition and am actually sitting here pondering if I have ever been in the company of anyone who reeked of fish. I think I need to get some kip.

I'm mocking a bit but on a serious note I can imagine it must be for those who suffer. That doc said there was different stuff they can take to alter the balances of the blood levels. What an awful thing to get though

I think it's quite rare yes....well in relative comparison anyway...youre more likely to bump into some soapdodger that smells like a beefburger with serious BO than someone with this fishy gubbins.

I fried some Mackeral yesterday....

Hang on - they discovered this in the 70's and still haven't found a way to sort it out? Surely it's treatable in some way? I'm mullered and need my bed and I'm missing stuff that's being written. Be back later to see what's what with this thing. Laters chickens! x

I really love Tilapia  Poor lady though 

Any particular fish?  Do different fish have different smells?  Or is it just a fishy smell in general?

There was a woman on Embarrassing Bodies with that

plenty of them on the tube

It is rare - I have done a Google search and found a statistic saying that in the States they estimate that less than 200,000 people suffer. That's out of a population of over 300 million.

So that is less than 1 in 1500 people.

is not my definition of rare. Sorry, I know you're an accountant...but as a social scientist that does not sound like a phenomenon or valid anomaly.

And they still stink the place out

My best friend at secondary school had this condition. I was really awful because we didn't know what it was and just thought she was smelly. I asked her once why her hands smelled of fish and she said it was the cat food!

I had to partner her in Country Dancing (don't laugh)y every week and my hands reeked by the end of it. She always had sweaty hands and anything she touched smelled. I had to rush off and wash my hands for fear of being sick.

My boyfriends friend went out with her but it soon was over because of the 100x worse smell 'down there' and everywhere else. Boys are just not very good at keeping things to themselves lol

It was years after we left school at that we learned about the condition she must have had... No one ever spoke about it and I don't see her anymore... I wonder if she still smells. She's divorced twice with 2 kids

Something to do with certain enzymes not being broken down in the liver is what I was told

I've haddock nuff of this..

I've got Perspiration Problems, at the top of the page.

Me too. And Airwick Fights Bad Odours. And Do You Sweat Excessively? And Armpit Odour...

Oh!

Your problems must be worse than mine!

I used the word "rare" as the website (wrongdiagnosis . com) described it as such. The article I saw says this:

Fish-odor syndrome: Rare Disease

Office of Rare Diseases (ORD) of the National Institutes of Health (NIH)

Fish-odor syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Fish-odor syndrome, or a subtype of Fish-odor syndrome, affects less than 200,000 people in the US population.
Source - National Institutes of Health (NIH)

Ophanet

Ophanet, a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Fish-odor syndrome as a "rare disease".

So the ORD says it's rare, but the Orphanet definition puts the condition just outside rare. But wthether the condition is technically rare or not makes little difference to those who suffer from it

About the same, except no-one dares tell you  

I love a slab of rare tuna.

Never mind, luv

aw I have heard of this before.    Its one of those things that stuck with me.   Can you imagine having this disorder?  You really would be justified in thinking "why me?"   I think this is probably my version of Josies "woman that had her face ripped off by a chimp"...   when I think about what it must be like to have Fish Odour Syndrome it makes me thankful for my lot in life really.

reads thread......sprays fanny with Chanel no5.....leaves

*nods approvingly*